| Agenda |
|
Wednesday May 5th |
|
|
5:30 pm – 7:30 pm |
Town Hall Meeting and Welcoming Reception
For all Registered Attendees
|
|
Thursday May 6th |
|
| 7:30 am |
Relaxation/Mind Body Exercises |
| 8:00 am – 9:00 am |
Continental Breakfast and Table Top Discussions
Bring Your Issues to the Table
- Men Only – Rob Ruff, M.D. - Moderator
- Women Only – Susan B. Fowler, PhD, RN, CNRN - Moderator
- Parents of Children with MG – Suzanne Ruff, PhD - Moderator
|
| 9:00 am – 9:45 am |
Meeting of the General Assembly/State of the Foundation
(voting and non-voting members)
|
| 9:45 am - 10:00 am |
Morning Break
|
| 10:00 am – Noon |
Continued General Assembly
(voting members only)
|
| 10:00 am – 11:00 am |
MG101 – The Basics
Individuals with MG diagnosed within the last two years
Matthew N. Meriggioli, M.D.
Director, Division of Neuromuscular Disease
Department of Neurology and Rehabilitation
University of Illinois Medical center
OR
MG Neuro Exam
Bernadette Tucker-Lipscomb, RN, MSN
Neuromuscular Clinical Specialist
Neuromuscular Clinic Manager
Duke University Medical Center
|
| 11:00 am – Noon |
Adverse Drug Events and Interaction in Myasthenia Gravis
Laurence J Kinsella, M.D., FAAN
Saint Louis University
|
| Noon – 1:30 pm |
Lunch
Health Care Reform in the United States
Sidney D. Watson, Esq.
Professor of Law
Center for Health Law Studies
Saint Louis University Law School
|
| 1:30 pm – 2:15 pm |
State-of-the-Art Treatment for Myasthenia Gravis
Gil Wolfe, M.D.
MSAB Vice Chair
Dr. Bob and Jean Smith Foundation Distinguished Chair
Professor of Neurology
University of Texas Southwestern Medical School
|
| 2:15 pm – 3:00 pm |
Clinical Trials-How Human Research is Done
Eve Holzemer, MSN, RN
Saint Louis University
|
| 3:00 pm – 3:15 pm |
Afternoon Break
|
| 3:15 pm – 4:00 pm |
Experimental Therapies: What The Future May Have in Store
Henry J. Kaminski, M.D.
Chairman
Department of Neurology & Psychiatry
Saint Louis University
|
| 4:00 pm – 4:15 pm |
Looking Back - Looking Forward
Arthur Strauss, M.D.
Life Fellow American Psychiatric Association
|
| 4:15 pm – 5:00 pm |
Break-Out Sessions: (choose one only)
A: Sex and MG – TBD
B: Quality of Life – Susan B. Fowler, PhD, RN, CNRN
MGFA Board of Directors
NAB Board
C: Neuro Exam – Wilma Koopman, RN (EC), MScN
Nurse Practitoner
London Health Sciences Centre
London Canada
NAB Chair
|
| 6:30 pm |
Awards Dinner St. Louis BBQ
Dinner Speaker: History of Myasthenia Gravis
John Keesey, M.D.
Professor Emeritus of Neurology, School of Medicine
University of California, Los Angeles
|
|
Friday May 7th |
|
|
7:15 am |
Run/Walk/Sit-a-Thon – NAB Fundraising Event
The Run/Walk is 1 mile (meet at registration desk)
|
|
8:00 am – 9:00 am |
Continental Breakfast – Continuation of Table Top Discussions From
Previous Day
|
|
9:00 am – 9:45 am |
The Eyes and MG
Gillian Roper-Hall
DBOT
Assistant Professor
Sophia Chung, M.D.
Saint Louis University
Department of Ophthalmology and Neurology
|
|
9:45 am – 10:30 am |
Sleep Apnea
Mike Nicolle, M.D., F.R.C.P., D. Phil.
Director Myasthenia Gravis Clinic
London Health Sciences Centre-University Hospital London Canada
|
|
10:30 am – 10:45 am |
Morning Break
|
|
10:45 am – 11:15 am |
Congenital Myasthenia
Duygu Selecen, M.D.
Pediatric Neurologist
Mayo Clinic, Rochester, MN
Associate Professor of Neurology
Assistant Professor of Pediatrics
Mayo College of Medicine
|
|
11:15 am – Noon |
Congenital Myasthenia
Psychology of Chronic Illness
Suzanne Ruff, PhD
Cleveland VA Medical Center
|
|
Noon – 1:30 pm |
Lunch
Healthy Aging: Optimizing Your Brain Health
Abhilash Desai, M.D.
Associate Professor of Psychiatry
Department of Neurology & Psychiatry
St. Louis University
|
|
1:30 pm – 2:15 pm |
Medical and Surgical Management of MG
Brian Crum, M.D.
Mayo Clinic, Rochester, MN
Assistant Professor of Neurology
Mayo College of Medicine
|
|
2:15 pm – 2:30 pm |
Afternoon Break
|
|
2:30 pm – 3:30 pm |
Ask the Professionals Panel
Moderator: Henry Kaminski, M.D.
|
|
3:30 pm – 4:00 pm |
Closing Remarks
Sam Schulhof
MGFA, Chair
|
| 2009 National Conference Presentations |
2010 MGFA National Conference