Current Research Agenda

MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.

Strategic Research Priority

Create and implement a coordinated international research agenda/program to find a cure for myasthenia gravis and improve the daily lives of individuals with myasthenia gravis by:

• Developing a consensus within the myasthenia gravis research community of the research priorities
• Communicating the priorities to the broader research community
• Leveraging research opportunities through public and private sector strategic partnerships
• Developing the next generation of researchers and clinicians

At the May 2010 MGFA Board meeting, four exciting new research proposals were approved by the Board.

• ANNF-MGFA Fellowship

Motion Approved: to expend the first year AANF fellowship grant of $52,500
subject to AANF’s Board approval

• RFA (Research Funding Announcement) for High Impact Pilot Projects on MG and Related Neuromuscular Junction Disorders. A $100K budget has been allocated for projects that meet the M/SAB requirements and approvals

• Consensus Conference on MG Study Design

• Clinical Practice Guidelines

Motion Approved: to approve a special program budget of $8k for a Nurses Clinical Practice Guidelines. The NAB will investigate the status of the Institute of Medicine’s study of best practices on CPG and compatibility with those of the NAB.