The MG-QOL15 is a brief survey, completed by the patient, that is designed to assess some aspects of "quality of life" related to myasthenia gravis. The MG-QOL15 takes about 2 minutes to complete and is easy-to-interpret also. It was designed to assess the "patient perspective" in the everyday clinic setting or in a clinical trial.
When completing the 15-item MG-QOL15, MG patients should consider only how their MG affects these items. For example, if a patient has no leg weakness but has a painful hip (unrelated to the MG) that causes walking trouble, the patient probably should report "not at all" to the item of, "I have trouble walking.” This is because any hip-related walking trouble is unrelated to the MG. One other note of clarification: if the patient is retired (unrelated to MG), he or she should report “not at all” to the item about whether the MG negatively impacts job/occupational status.
Download the MG-QOL15 here.