Resource Categories
The Patient Assistance and Services Information list is a broad directory of external resources we direct people to in response to many frequently-asked questions or requests for assistance we receive in the national office.
Please note that MGFA is not in any way associated with the companies or organizations referenced below, and we do not endorse their services. The organizations/services are provided strictly for informational purposes and are presented only as possible resources for patients. Further, the information below is not intended to be a comprehensive listing of all available programs.
Click here to see a list of legal advocacy firms that may be able to assist you.
1-800-677-1116, http://www.eldercare.gov/Eldercare.NET/Public/Index.aspx
Eldercare is a public service of the U.S. Administration on Aging, and the Eldercare Locator connects older Americans and their caregivers with sources of information on senior services. The service links those who need assistance with state and local area agencies on aging and community-based organizations that serve older adults and their caregivers.
1-866-968-7842, http://www.yourtickettowork.com/program_info
The Ticket to Work and Self-Sufficiency Program is an employment program for people with disabilities who are interested in going to work. The Ticket Program is part of the Ticket to Work and Work Incentives Improvement Act of 1999-legislation designed to remove many of the barriers that previously influenced people's decisions about going to work because of concerns over losing health care coverage.
http://www.jan.wvu.edu/media/MG.html
Job Accommodation Network (JAN): Accommodating people with myasthenia gravis. JAN's mission is to facilitate the employment and retention of workers with disabilities by providing employers, employment providers, people with disabilities, their family members and other interested parties with information on job accommodations, self-employment and small business opportunities.
http://www.selfadvocacy.com/index.htm
A grassroots organization run for and by people with developmental and other disabilities. ACT works in two ways: providing information, skill building and leadership opportunities to individuals with disabilities; and challenging institutional barriers by organizing people with disabilities around issues of common concern.
http://www.ada.gov/
The ADA prohibits the discrimination on the basis of disability in employment, services offered by state and local governments, services and supplies offered by private companies, and in commercial facilities. This site provides links on how to file a complaint, an etiquette handbook, the Council for Disability Rights, etc.
http://www.rxlist.com
The Internet drug index; gives information on over 300 prescription drugs, including description, brand, clinical pharmacology, indications and dosage, side effects/drug interactions, warnings/precautions, overdosage/contraindictions, and patient information.
https://www.privacyrights.org/
Privacy rights clearinghouse: Nonprofit consumer information and advocacy center. Over 24 links containing information on how to protect oneself from telemarketers, how to keep a social security number private, possible employer concerns, etc.
http://www.privacyrights.org/fs/fs8-med.htm
Answers the question, "How private is my medical information?" Gives tips on how to protect your medical records, when HIPAA does not apply, how to access your own records, etc.
1-888-675-1405, http://mercymedical.org/
Mercy Medical Airlift (MMA) is a nonprofit organization dedicated to serving people in situations of compelling human need through the provision of charitable air transportation. MMA is totally supported through charitable giving and the services of volunteer pilots and office assistants.
1-800-296-1217, http://www.patient-travel.org
The National Patient Travel Helpline provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available in the national charitable medical air transportation network. The travel helpline is available 24 hours/day.
These lists are not monitored by the MGFA and the MGFA assumes no responsibility for their content.
http://lists.asu.edu/archives/ocular.html
MML is a listserv (i.e. e-mail list) for people with myasthenia gravis. It has an emphasis on ocular myasthenia but includes all types (i.e. generalized, ocular, congenital).
http://www.carepages.com/
Free, personal, private Web pages that help family and friends communicate when someone is receiving care.
http://www.caringbridge.org
CaringBridge offers free, personalized Web sites to those wishing to stay in touch with family and friends during significant life events. CaringBridge authors quickly and easily create personalized Web sites that display journal entries and photographs