February 28, 2015 is Rare Disease Day. For the MG Community this is a chance to bring attention to MG and the challenges we and all rare disease sufferers face.
February 28th, 2015 will be Rare Disease Day. As I write, we are 81 days, 13 hours and 10 minutes away from “the day.” But, that’s no excuse to not start planning for your observance of this important event in the world of rare diseases of which MG is one. Rare Disease Day is produced by the National Organization for Rare Diseases, better known as NORD. To learn about the day and what you can do, go to http://rarediseaseday.us/about/ where you can find ideas, facts, events, resources and handouts. Participating is as easy as sending a photo holding the Handprints Across America sign and writing briefly about your rare disease experience, or, working within your state for a proclamation or encouraging your school to teach about rare diseases with the information provided by NORD at http://rarediseaseday.us/take-action-now/in-school-activities/. Check out the site and plan your observance!