Click here to see the MGFA progress report
For cooks and those who love to eat – that’s right everyone -- check out Whitney Miller’s latest cookbook, Whitney Miller’s New Southern Table. Whitney’s a friend of MGFA. She’s raised funds for MGFA through the sale of her cookbooks, spoke several times at the MGFA National Conference and more, since her Dad was diagnosed with MG. Whitney’s a Master Chef – a recognition she won at just 22 years old. Since then she’s honed her skills around the world as a judge in competitions and events. In this new book, Whitney focuses on “Preserving traditional family flavors,” and she adds “my own special touches, by lightening up classic dishes without losing flavor, experimenting with different southern ingredients , and using new techniques and cooking methods I’ve learned over the years.” For two fun recipes from the collection see, “Old Fashioned Fudge Popsicles” and “Homemade Ketchup” created with health conscious MGers in mind. Consider Whitney Miller’s New Southern Table as a gift for the cooks in your life. Get your copy here.
Help us continue to unite for a cure! You can now download the 2014 June Awareness poster to share with your Chapter and community.
Download MGFA's Awareness poster to use year-round.
During the month of June, MGFA’s official “MG Awareness Month,” the national office, as well as chapters and individuals throughout the country, is involved in a variety of activities to promote awareness. These activities include obtaining proclamations from local and state officials, providing information about MG to the media, holding MG awareness events, disseminating information via social networks, and distributing MGFA’s “United For A Cure. A World Without MG” June Awareness Month poster. Several states and cities, including New York, Massachusetts, Nevada and most recently Connecticut, have issued proclamations, recognizing the month of June as Myasthenia Gravis Awareness Month!
You can help us spread awareness by educating yourself and others about MG.
Enjoy Summer with a Popsicle
FOX Television MasterChef Season One winner and cookbook author Whitney Miller, who has been an advocate of raising awareness and funds for MG since her father John Miller was diagnosed, has been active in June and July, promoting the MGFA’s partnership with ZOKU and Miller’s popsicle maker fundraiser. Whitney has appeared in the media on ABC Birmingham News, Mississippi Public Broadcasting, Fox 8 New Orleans and in a story in the Picayune Item.
Alfred Jaretzki III, Professor Emeritus of Clinical Surgery at Columbia Presbyterian Medical Center in New York City died at age 94 on May 29, 2014. He was also a valuable member of Myasthenia Gravis Foundation of America’s Medical/Scientific Advisory Board. Read more here.
Launched under the leadership of the MGFA in 2011, MG Walk continues to gain momentum as it raises awareness about MG, energizes people to fight the disease and generates funds for research. After 13 MGWalks so far this year, $452,513 has been raised toward a year-end goal of $750,000. The Tri-State Walk kicked off June Awareness Month on June 1, and the New York-based event raised $176, 729; special congratulations to the efforts of Jasmine Snow and her team for raising close to $70,000. Fifteen walks are scheduled for the remainder of 2013. In addition, the “Virtual MG Walk” is ongoing, and anyone, anywhere can participate. For information on the Walk, to find a Walk near you, and to register, click on http://www.mgwalk.org/mgwalk/findevent_register.asp or call 855-MG-Walks (855-649-2557).
Alert to Patients Experiencing Problems with Medications:
If you are experiencing any problems with your medications, including such problems as crumbling or disintegration, please file a MedWatch Report with the Food and Drug Administration. You may file your complaint online here. Please also contact the MGFA office at email@example.com once you have filed your complaint.