Help us continue to unite for a cure! You can now download the 2013 June Awareness poster to share with your Chapter and community.
Download MGFA's new Awareness poster to use year-round.
During MGFA’s official “June is MG Awareness Month,” the national office, as well as chapters and individuals throughout the country, were involved in a variety of activities to promote awareness. These activities included obtaining proclamations from local and state officials, providing information about MG to the media, holding MG awareness events, disseminating information via social networks, and distributing MGFA’s “The Faces of MG” June Awareness Month poster. Several states, including New York, Boston and Nevada, issued proclamations, recognizing the month of June as Myasthenia Gravis Awareness Month!
You can help us spread awareness by educating yourself and others about MG.
Enjoy Summer with a Popsicle
FOX Television MasterChef Season One winner and cookbook author Whitney Miller, who has been an advocate of raising awareness and funds for MG since her father John Miller was diagnosed, has been active in June and July, promoting the MGFA’s partnership with ZOKU and Miller’s popsicle maker fundraiser. Whitney has appeared in the media on ABC Birmingham News, Mississippi Public Broadcasting, Fox 8 New Orleans and in a story in the Picayune Item.
MGFA’s video contest “Tell Your Stories” is closed to entries, and now the public has an opportunity to view the videos and vote on their favorites. Watch for the announcement on MGFA’s website www.myasthenia.org
Launched under the leadership of the MGFA in 2011, MG Walk continues to gain momentum as it raises awareness about MG, energizes people to fight the disease and generates funds for research. After 13 MGWalks so far this year, $452,513 has been raised toward a year-end goal of $750,000. The Tri-State Walk kicked off June Awareness Month on June 1, and the New York-based event raised $176, 729; special congratulations to the efforts of Jasmine Snow and her team for raising close to $70,000. Fifteen walks are scheduled for the remainder of 2013. In addition, the “Virtual MG Walk” is ongoing, and anyone, anywhere can participate. For information on the Walk, to find a Walk near you, and to register, click on http://www.mgwalk.org/mgwalk/findevent_register.asp or call 855-MG-Walks (855-649-2557).
Alert to Patients Experiencing Problems with Medications:
If you are experiencing any problems with your medications, including such problems as crumbling or disintegration, please file a MedWatch Report with the Food and Drug Administration. You may file your complaint online here. Please also contact the MGFA office at firstname.lastname@example.org once you have filed your complaint.