The Myasthenia Gravis Foundation of America (MGFA) is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis. MGFA serves patients, their families and caregivers through a network of chapters, support groups and programs. Each chapter shares the vision of a world without MG.
MGFA designated June of each year as "MG Awareness Month". It is a call to action to patients, the medical community and advocates to come together to increase awareness of MG and help eradicate MG. Contact your local chapter or the National Office for more details. Click below to print your choice of MGFA's June Awareness Posters:
MGFA June Awareness Poster - blue background
MGFA June Awareness Poster - white background
Click here to view 2013 June Awareness Month Information and Tools to Attract Public Attention. Please utilize these materials in order to raise MG awareness throughout your community!
For full contest rules, prizes and deadlines click here.
We are pleased to announce the publication of the "Clinical Practice Guidelines for the Care of Patients with Myasthenia Gravis" for nursing professionals caring for patients with MG. The guidelines were fully funded by a grant from the Myasthenia Gravis Foundation of America, Inc. Please see the complete Myasthenia Gravis Foundation of America and American Association for Neurological Nurses press release here.
Through your continued generous support, the MGFA is excited to announce the availability of "myMG." myMG is a free smartphone app designed to help you and your doctor better understand the effect of your ...myasthenia gravis on your daily life. Take the MG Quality of Life survey and the MG Activities of Daily Living survey in myMG on a regular basis. myMG tracks your survey results and provides a snapshot for your doctor of fluctuations in your myasthenia gravis over a period of time. myMG is available on iTunes and Google Play. A web-based version is also available at https://mymg.myasthenia.org/home for those without a smartphone.
On behalf of the tens of thousands of individuals and families who are impacted every day by the challenges of Myasthenia Gravis (MG), we are very pleased to inform you of the successful completion of the Second Annual MG Golf Tournament. For additional information click here.
The MGFA and the MSAB wish to inform MGFA members and others in the MG community that ambenonium chloride (Mytelase) will no longer be produced. This is an older acetylcholinesterase inhibitor and is rarely used in clinical practice. Pyridostigmine (Mestinon) has been the mainstay of anticholinesterase therapy for many years in myasthenia gravis. If you have been taking ambenonium, please contact your treating physician for available alternatives. To read the statement from Sanofi regarding Mytelase click here.
The mission of ITMIG is to promote the advancement of clinical and basic science pertaining to thymic and other mediastinal malignancies and related conditions. ITMIG is an academic organization that provides structure, organization and scientific rigor to research in these diseases.
ITMIG has been embraced by other professional organizations in related fields, including the Myasthenia Gravis Foundation of America. For more information click here.
The Myasthenia Gravis Foundation of America requests submission of proposals to support pilot studies that are highly focused and innovative with a clear plan that will lead to new federal, pharmaceutical, or private foundation supported investigations. Learn more here.
Saint Louis University investigators will look at a new option for patients with myasthenia gravis, a highly debilitating chronic autoimmune disorder that causes severe muscle weakness and fatigue. Read more here
The MGQOL15 survey is designed to assess aspects of quality of life related to Myasthenia Gravis. Read more.
Dr. Ted Burns from the University of Virginia and a member of the M/SAB is producing a series of patient oriented podcasts for MGFA with information on the diagnosis, treatment, and management of MG. A new podcast on The Benefits of Exercise in the Care of Patients with Myasthenia Gravis was produced in March 2012. To view and listen to the podcast series, click here.
2013 National Conference
The National Conference was held May 8-10, 2013 at the
Intercontinental at Doral in Miami, Florida
To view the Agenda for the National Conference click here.
Stay tuned for videos of the presentations from the National Conference.
There is no known cure for MG, but there are effective treatments that allow many-but not all-people with MG to lead full lives. Although the treatments will not cure MG, patients may have significant improvement in their muscle strength.