The Myasthenia Gravis Foundation of America (MGFA) is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis. MGFA serves patients, their families and caregivers through a network of chapters, support groups and programs. Each chapter shares the vision of a world without MG.
Myasthenia gravis (pronounced My-as-theen-ee-a Grav-us) comes from the Greek and Latin words meaning "grave muscular weakness." The most common form of MG is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups. To learn more click here.
February 28, 2015 will be Rare Disease Day. Rare Disease Day is produced by the National Organization for Rare Diseases, better known as NORD. To learn more, click here.
MG enjoyed a moment of fame when MG patient, Alice White-Kaminski of Michigan, appeared on a Detroit Public Television program, Feel Grand. In an episode focused on auto-immune disorders, Alice was able to ask Dr. Jennifer Caudle questions about MG thereby educating the television audience about Myasthenia Gravis. To see the episode please click here.
The American Society of Health System Pharmacists reported a shortage of Imuran. For more details, please click here.
The MG Walk, has named "MG Walk Heroes" across each of the cities in which the Walks are taking place across the nation. Click here to read these heroes' stories.
The Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT) is currently looking for people with myasthenia gravis (MG) to be part of a research study. Read more here
Rituximab Study FAQs
Additional Rituximab Study Information
Alexion Pharmaceuticals is conducting a clinical trial to determine if eculizumab is effective for the treatment of patients with refractory generalized Myasthenia Gravis (gMG). Read more here.
Dr. Ted Burns, MGFA MSAB Chair has produced a series of patient oriented podcasts for MGFA . To listen to the podcast series, click here.
2015 National Conference
Save - the - date The 2015 National Conference will be held April 29 - May 1 at the Wyndham San Diego Bayside in San Diego, CA. To make your hotel reservations click here.
Registration details coming soon.
To view the 2014 National Conference Video Presentations click here.
There is no known cure for MG, but there are effective treatments that allow many-but not all-people with MG to lead full lives. Although the treatments will not cure MG, patients may have significant improvement in their muscle strength.